Wednesday, February 27, 2008
Well, they extubated Ned yesterday morning at 8:00am and transitioned him to the CPAP which still provides a good bit of pressure support. He did extremely well and Travis and I both got to hold him for about 30 minutes. It was wonderful!! I don't think we were the only ones that enjoyed it- Ned's oxygenation stats were the absolute best for the day when he was being snuggled- it warmed my heart. I thought, that's how it is when God holds us during our struggles. Ned's body wasn't in any better physical condition while we were holding him. His struggle to breathe remained, but he found rest, peace and comfort in arms. That's exactly what it's like to go through a deep valley with the Lord. The struggle is the same, but your response is supernaturally different.
Around 2:00pm, they transitioned him from the CPAP to the high-flow nasal cannula better known around the PICU as Vapotherm (it is absolutely necessary that you learn to speak in acronymns if you're going to survive conversationally in the PICU)!! So far, so good! Ned has been off the vent now for over 24 hours. The magic number is the 48 hour mark when they will pronounce this wean off the vent sucessful, so we'll keep the prayers coming at least till then....just to be safe!
Otherwise, I have little to share today. It seems like on days when Ned has great tasks before him, I completely exhaust myself encouraging and supporting him. Last night, I felt like I had run a marathon, but I actually just sat at his bedside all day? He is working his little body to death to learn to breathe, but for some reason I feel like I have had some major part in it, which I havent....sympathy pains, I guess?
Below are some pictures from our highly eventful day. He is looking great, although he got an old man hair-do during his bath on Monday night. I think the wild man hair-do suits him better!
Thank you and love and blessing to you all!
Betsy, Travis, Jack & Ned