"What would have become of me had I not believed that I would see the Lord's goodness in the land of the LIVING. Wait, hope for and EXPECT the Lord. Be strong and of good courage and may your heart (Ned) be sturdy and enduring.....Yes, Wait For and Hope For and Expect the Lord."

Psalm 27:13-14 (Amp)

Friday, March 28, 2008

In For the Long Haul

This will be really short and sweet as I'm walking out the door to go to the hospital. The doctors assured me yesterday that I would be here for the March of Dimes walk on April 19th, in fact, they assured me that I'll be here at least another month? Oh Well, at least I know what to expect. I think God could get Ned moving quicker if He wanted to....we'll see.

Not much change yesterday. Ned didn't gain any weight, but considering they had given him extra doses of a diuretic to dry out any potential fluid on his lungs (a concern with the temperature he was running), they said it was good that he didn't loose any weight. They weighed him again last night so I'm anxious to see how yesterday did for him.

They continue to increase his feeds every 3 hours by the feeding tube. He should be up to 32 mL's as of this morning at 8am. They have him at a goal of 65mL's so we're about a week away for hitting that mark at our current increase rate. He has tolerated the increases well and I'm so thankful he hasn't experienced any serious reflux issues. The occupation therapist didn't come by yesterday...I'm going to push for that a little more today. Our doctors put in the order, so I'm not sure where she was?

That's the highlights. I'll post more details tonight. Lots of love!

Betsy, Travis, Jack & Ned


Cadenne Hope's Grandma said...

So glad he is doing well. One thing we always had to remind ourselves with Cadenne Hope was that everything was in God's hands and timing. That definitely gives us hope and peace, because we realize that even if it looks like things aren't moving along because of one thing or another, God sees it all and has it in control. I am praying for continued peace in the midst of all of this, and for healing for your precious little boy!

Anonymous said...

Hi, guys, just wanted to let you know that Ned is still in our thoughts and prayers each day....and also your whole family. I'm sure you're a bit restless to get him home...and just think, home is much closer today than it was yesterday! We are praying that God will continue to touch little Ned's body with His healing power and allow him to gain weight, stay healthy, and grow in grace.
Thanks for the frequent posts to keep us all updated. Love to all, Sherry