Sunday, March 16, 2008
Final Surgery Scheduled
Ned will have his ileostomy put back down on Wednesday. Because he is still struggling with nutrition and weight gain, the doctors feel that getting him put together again is key to his recovery. Ned has only gained 5oz. since birth, but he has grown almost 2 inches, so he is extremely skinny! It is also important for his body to start absorbing enough nutrition so his body can grow his lungs and regenerate liver cells that were damaged by him being on IV nutrition for so long.
I am feeling extremely anxious about this surgery for some reason. It would be considered a substantial surgery; however, not as risky as his first two. I think I'm so afraid because Ned is so much better now, I fear a backslide. He is wearing clothes and waking up and I'm really getting an opportunity to get to know him. When he had his first two surgeries, we had nowhere to go but up, because he was so unstable. I have been thinking about the Israelites in the desert a lot this weekend. When they were wandering in the desert and had nothing, their faith and trust in God was much stronger, but when they got to the edge of the promised land, on the verge of receiving the fullness of God's blessing, they became too afraid to face the giants in the land. I want to have the courage to receive God's blessing and to believe He will deliver Ned just as He has shown me that He will. But I am learning that fear is a very powerful influence. When facing fear, I find that my focus has to be completely on God or I find myself completely focused on my fear. I am in that tenuous place now, but I am praying that I can continue to believe in His promises!
Please continue to lift Ned up this week in your prayers. His breathing has come a long way, but in order to conserve calories, they have ceased weaning him any further at this time. He'll most likely have to go through the whole weaning process again anyway since he'll have to be intubated for the surgery. Hopefully, since he is stronger now, it won't take was long. Mostly, please pray that this surgery will allow Ned to start absorbing more of his food so he can start growing and healing.....that's our biggest hold up at the moment. But, now that we are back in the NICU, that is what they will focus on and that is where they are the experts.
Thank you all for your continued love and support.
Betsy, Travis, Jack & Ned