The MRI test was sucessfully performed this morning and the results came back showing that Ned's brain structure is perfectly normal!!! Praise God, Praise God!! He went down for the test around 9am so when I still hadn't heard anything around 4:30 this afternoon, I slipped out to the main desk where Dr. McCaffery was working on a computer. I asked him if he thought it was possible that we may still get the results in today? He said, he was just looking them up then he glanced up and at and said "normal". I jumped around in the hall and Dr. McCaffery and I were giving high-5's. When I reported back into the room, all my nurses were estatic with the news. My little man has a bit of a wandering eye, but no brain defects. For the first time in 9 months, I finally feel like there is absolutely nothing looming over me at the moment and it feels great!
Ned had a couple of visitors come by tonight who haven't seen him in some time. One of the respiratory therapists fromt he PICU and the neonatologist that I saw at UNC during my pregnancy. Both of them were shocked to see Ned off of all oxygen and growing and looking so great. Dr. Ruma, my neonatologist, was even more astounded when he learned that Ned had also been diagnosed with the aorta coarctation and had been through that repair surgery as well.
We made it through another day of no spitting up.....it's a miracle. I mean, he is on reflux medications, but he has been on reflux medications. He has never been one day without spitting up multiple times, now he has been multiple days without spitting up one time. It is great and God is good.
I am going home tomorrow to get a couple things done for work and to pick up Jack. We are planning on spending the weekend in Chapel Hill. We're going to join in the March of Dimes walk in Raleigh with some of the hospital staff on Saturday and we're going to go with some of our nurses to a music festival on Sunday. And the biggest event of all this weekend is that Jack and Ned will finally meet!!! I'm so excited to see how Jack will react to finally seeing Ned face-to-face. I'll video it and try to upload it to the blog next week!
I'm heading to bed now....busy day and a big weekend ahead. I love you all for praying my son well!
Betsy, Travis, Jack and Ned