This blog will be brief because I'm really tired and the day was exhausting, yet uneventful. Ned's MRI was scheduled for 9:30 this morning. I got to the hospital around 10:30 when he was due to return to the NICU. He and his nurse, Amy, rolled back into the room around 10:45....no MRI was performed. Ned had takend 4 boluses of narcotics, but was wide awake and happy as a lark. He was playing and kicking around- not suitable behavior for a test. While he appeared to be narcotic resistant, he actually just has a really delayed reaction. Around noon, he finally zonked out into a drug-induced sleep never to really wake-up for the rest of the day.
So, we'll reschedule the MRI, probably for next week, now knowing that he will need to be sedated hours in advance. Please continue to pray for normal brain structure. Also, that his lungs will remain clear. On days when he is sedated, he doesn't feel the sensation to cough to clear his lungs and they start sounding really junky....not good for a child with chronic lung disease.
I'll post more later- love you all!
Betsy, Travis, Jack & Ned