"What would have become of me had I not believed that I would see the Lord's goodness in the land of the LIVING. Wait, hope for and EXPECT the Lord. Be strong and of good courage and may your heart (Ned) be sturdy and enduring.....Yes, Wait For and Hope For and Expect the Lord."

Psalm 27:13-14 (Amp)

Tuesday, December 23, 2008

So Sorry!!

I can't say I know how time has gotten away from me so over the past several months other than to say we have been on a rollercoaster with Ned's feeds.  It has consumed our lives to say the least.  He still really isn't tolerating his feeds that well, but after a failed surgical procedure in Charlotte, we have taken him back to Chapel Hill where we feel like we'll eventually get to the bottom of it.  He is currently down 2lbs. and just can't take very much volume at a time at all.  He is refluxing and having bile in his tummy again.  Everyone is certainly perplexed about what is going on with him,  but I am hoping for some resolve in the near future.  He is a completely different child when he is feeling well.  I hate to see how he struggles and seems to be in pain during every feed.  It is such a dread for me to have to start his feeds and he cries from the beginning like he knows it is going to be painful.  Please pray that the Lord will grant Ned some rest and will heal whatever it is in his little GI tract that is so whacked out at the moment.  
When he isn't eating, Ned is very affectionate now and laughs and smiles all the time.  All his seriousness has somewhat disappeared.  I'm going to post some recent pictures of him and Jack and I'll update after Christmas.  I hope everyone has a very Merry Christmas and very blessed New Year!  You have all played a very important role in our 2008 and I am thankful for your continued prayers and support.


Much love and many blessings,
Travis, Betsy, Jack & Ned

4 comments:

Cadenne Hope's Grandma said...

So glad to read the update, and you will continue to be in our prayers that the doctors will figure out what is going on. It must be terribly frustrating.

These babies continue to have their challenges, and it is amazing how they continue to fight and grow. Weight is a concern with our Cadenne too. She isn't gaining, even though reflux doesn't seem to be an issue. We think she just burns lots of calories just breathing. Unfortunately, a couple of the doctors do their "tsk, tsk, tsk" thing at Tricia, and it drives her NUTS!

He is adorable, by the way! I love the little smile...such a cutie! He was always such a serious little guy! It is nice to see that grin!

Hang in there...praying for you guys.

Elizabeth said...

I hope that there is peace over the holidays and the do discover the source of the problem and reslove it!

He gets more adorable every day -

Merry Christmas!
Elizabeth

PS Wouldn't it be nice if the world would stop spinning so we could catch up?

Anonymous said...

Betsy and Travis,
He is absolutely beautiful. I hope that the road to recover is only a short distance away for Ned. You will be in my prayers.

Love,

Natasha Alexander

Anonymous said...

Hi, betsy its kelly from the RMH,u let me and my husben vist ned. He is so cute as well is jack. Im so sorry ned cant keep his food, But i'll ask my son charlie to look over him***lil charlie passed away sept 19,08 I miss him so much,but i stay storng for my lil girl molly.I hope with all my heart ned will make it and live a HEALTHY and HAPPY LIFE!!!*

luv, Kelly Powers