I know everyone is astonished...I'm quite shocked myself!! Ned has had an eventful week, so I really had to share. We'll cover the good news first:
Ned has made major strides in his physical therapy this week. He is rolling onto his stomach (assisted), and tolerating it very well. He's even moving his little legs like he want to go somewhere. He is also holding his weight on his hands and knees. I suppose he'll be wanting to start crawling soon, I'm just not sure how we're going to manage that since he's connected to feed and oxygen all the time. That will be a little project for me. Ned has also been sitting up all by his self this week. He doesn't sit very long, but his endurance and strength is definitely improving. I've been so proud!
On the downside, we're back to gagging and yacking up spit again...not tolerating feeds. I'm starting to think it is another stomach ulcer? The doctor called in some medicine for it yesterday so I guess we'll just see how it works? Please pray about it. I'm so hoping he can continue to tolerate and stop the spitting up so we don't have to change is feeding tube to the one that keeps him on continuous feeds....that may really slow him down as far as mobility.
Travis and I have been asked to be a part of the radio-thon in November to help raise money for the UNC Children's Hospital. I am so excited to be able to share with people and raise awareness for CDH, as well as, praise the doctors and staff there who were so wonderful with healing Ned and in their treatment of him.
Please keep the three CDH babies currently in the hospital in your prayers (links to their websites are above): Nayeli in San Fransico, Carter at Duke and Lizzy Jo at UNC.
I hope to post some Halloween pictures of Jack and Ned, but it all depends on Ned's mood this afternoon.....it hasn't been all that pleasant this week.
Much Love and Many Blessings
Travis, Betsy, Jack and Ned
Friday, October 31, 2008
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5 comments:
betsy,, way to go!! you did it! hope ned gets his kinks worked out. please let us knnow more about the radio-thon. prayers for all of you guys!
You did it! I was trying to remember to check back to see if you had posted. Glad to hear Ned's on the move and praying for a solution to the feeding issues.
Hey!! Glad to hear you all are doing so well. I have been checking the website quite often and also checking in on the other babies. I have been sending up lots of prayers for everyone!! Delsin is doing really well - you can check him out at www.dajones66.spaces.live.com
Kiss all those beautiful boys for me!! Let me know if I can do anything for you.
Ok, what happened??? You haven't posted since Halloween! I'm having Ned withdrawals :)
me too!!!! whats up w/ all of you guys???? (o: prayers for all of you guys!!!!!!!!
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