"What would have become of me had I not believed that I would see the Lord's goodness in the land of the LIVING. Wait, hope for and EXPECT the Lord. Be strong and of good courage and may your heart (Ned) be sturdy and enduring.....Yes, Wait For and Hope For and Expect the Lord."

Psalm 27:13-14 (Amp)

Sunday, May 11, 2008

The past couple days have been a bit slow and a little surreal and nostalgic for me. Ned continues to do well. We are working on getting him back up to full feeds which we should reach that goal by tomorrow afternoon. The home health equipment company will be delivering the feeding pump we will take home on Tuesday and we'll be trained on how to use that specific piece of equipment. I'm not sure if we'll leave here on Tuesday or Wednesday, but they are projecting one day or the other! They also hope to get Ned on bolus feeds pretty quickly which means that we'll pump him full of food over like 30 minutes then he'll have 2.5 hours where he is completely wireless!! At the moment, the only cord which remains is the feeding tube so he feels so free to me, it's amazing! When I went to pick up my friends new little girl the other day I felt so awkward because I wasn't sure what to do with my free hand that didn't need to be managing cords while lifting....I felt so incapable of holding a normal baby....I think I'll get used to it though.

I'm sure some of you remember that I mentioned meeting a girl named Kelly who was pregnant with a little boy, Charlie, who had been diagnosed prenatally with CDH and a heart condition. Charlie was born last Friday and has done pretty well over the weekend. They hope to perform his CDH repair on Tuesday if things continue to go well. Please keep him and his family in your prayers. Kelly is having a really difficult time at the moment and hasn't slept in 4 days.

Happy mothers' day to everyone...I'm going to celebrate mothers' day later this week when we're all together....FINALLY. Who can believe that this time next week I'll be home with both my boys? I love you all!

Betsy, Travis, Jack & Ned

PS- If anyone is looking for a night of good clean fun....please purchase and play "Cranium"....I have laughted my head off playing tonight!

8 comments:

Anonymous said...

Betsy and Travis,
It seems surreal that you will soon be home with the entire family. I am so excited at all that God has done these past months. Please know we continue to keep each of you in our prayers
Phyllis

Anonymous said...

I'm so excited for you all! It's been a long, tough, road, but you have stayed strong, trusting in the Lord. I have read your blog each day and your words have never failed to inspire and amaze me. I will continue to pray for you all. I'm excited to visit you and your WHOLE family in your new home.
Love,
Marie Ferguson

Anonymous said...

Betsy,

What perfect timing for Ned to get to come home... A wonderful Mother's Day gift! What a journey it has been and it is amazing how many lives have been touched by this sweet baby. We are rejoicing with you in the homecoming and continue to pray for you all! We love ya and ENJOY your boys when you get home! Love, Tammy, Randy & Colby

Anonymous said...

HOME with the ENTIRE FAMILY. What a Wonderful Day that will be! To God Be The Glory, Great Things He Has Done. It's SOOO REAL! Love you, Krista

Cadenne Hope's Grandma said...

God is good. It has been so wonderful to follow this story since the day Ned was born, and to see God at work all along the way. His work is not done, though, and I know He will continue to work in Ned's little body and in your hearts through it.

Don't you just love that God takes such a difficult situation and uses it for eternal good in our hearts. You are both just a little bit more like Jesus--or maybe a lot more--because of this faith journey you are on. It's wonderful.

Can't wait to hear that you guys are home!

kim said...

Can't believe you guys are coming home, I know you are so ready. Your house and yard are looking pretty, ya'll have had alot to do, and it was great seeing you are the wedding. I can't wait until all of you are together in your new home and start sharing your life together, since you have been a part all of these months. It is going to be so fun getting back to normal. I know Jack and Margaret are especially excited, I am excited for all of you, but I am going to miss updates and knowing what is going on. Can't wait to see Baby Ned! Have a great week, and I hope you are home very soon. Sincerely, The Alexander's Kim Donald, Emily and Brock

Darcy said...

Betsy,
I haven't commented in some time but I still check on you and Ned. I have been blessed beyond words to witness from afar the works that our amazing God has done in your lives. What a beautiful miracle Ned is and what a witness your family is.
I will continue to pray for you and the transition back home.
darcy
http://ittybittyblog.wordpress.com

Anonymous said...

Betsy and Travis,

I am sitting at my desk praising God and crying happy tears of course. I can only imagine how long and difficult this journey must have been but God remained right beside you and Ned. I know without a shadow of a doubt that your experience has brought so many closer to God and only reminds me never question his will. I am so happy for your family and can't wait to get to come and see Ned when you get him home.
All of my love,

Natasha Alexander