"What would have become of me had I not believed that I would see the Lord's goodness in the land of the LIVING. Wait, hope for and EXPECT the Lord. Be strong and of good courage and may your heart (Ned) be sturdy and enduring.....Yes, Wait For and Hope For and Expect the Lord."

Psalm 27:13-14 (Amp)

Tuesday, May 13, 2008

The Date Has Been Set!

We're going home on Thursday!! I can't believe it..... just seems like a dream! I'm a little afraid to completely get my hopes up, but it looks like a go. I had to say goodbye to some of my nurses today and I had a difficult time letting them go and knowing that they had to let my son go. They have invested a lot of time and energy into Ned's survival and progress. They have become my friends and the only family Ned has really known. As much as I am ready to get back home and to our normal life, the people I have met here will be dearly missed.

Most of our days are now being spent getting prepared for home. I have trained on the feeding pump that we'll be taking home. Ned began bolus feedings today and seems to be tolerating it rather well. The feeding change is a big adjustment for his belly, but he looks like he's going to make his peace with it. Ned passed his carseat test with flying colors. What that basically means is that he sat in his carseat for 3 hours without any problems....he actually slept through the whole thing. I can only hope he does the same for the road trip on Thursday!

The doctors have been so good to get everything set up for us at home. They have tracked down a pediatrician, and all my specialists in Charlotte. I will return to Chapel Hill for follow-ups with our surgery team, but everything else will be handled out of CMC. Ned's general surgeon told me yesterday that he and the heart surgeon were high-fiving in the hallways about how well Ned has done and how he's going home. That melts my heart that they are so excited about Ned...such truly beautiful people.

As an aside, baby Charlie has made it through his CDH repair this afternoon. His hernia didn't end up being that severe and they were able to close the whole without the use of a patch. They are planning on peforming his first of several surgeries to repair his heart defect on Friday. Please keep Charlie and his family in your prayers. They are still struggling to get their minds around everything and they have a long road to hoe.

I want to thank you all again for all your prayers and encouragement over the past 4 months and even prior to that. I know everyone will want to see Ned and I so wish we could have a big coming home party, but until we meet with some of his specialists, we're not sure how they are going to want us to handle germ control. I'll keep everyone posted on what they think his immune system and lungs can handle and as soon as we can have company, I'll let everyone know. Until then, I'll keep the blog updated so everyone can continue to track Ned's progress. I know you all have a lot of time and emotions invested in our little man as well. Love you all and can't wait to see you soon!

Much love and many blessings,
Betsy, Travis, Jack & Ned

8 comments:

Danielle, Jason, Landrie and Ava Wofford said...

Betsy and Travis-
Wow! Jason and I are thrilled for Baby Ned's arrival to his home. We thank God for you both allowing us to feel part of his amazing journey of life.
Again, I appauld you both for your tremendous faith and strength that you both have allowed us to witness. THANK YOU!
Our prayers continue for you both and for your beautiful family!
Jason and I are here for you all. If you need a nurse, I'm here!!

God bless you,
Danielle & Jason WOfford

Vicki Jensen said...

What amazing news! I can't wait to see a photo of Ned at home!
Vicki
mom to Jack, LCDH&ECMO
www.babyjackjensen.blogspot.com

Anonymous said...

What wonderful news! We are so thrilled to hear that Ned will be home at last...while I know you will miss the daily presence of the new friends you've made, your "old" friends are ready to make up for lost time. LOL I know everyone will need to give you guys space to get Ned and Jack adjusted, but just know how ecstatic we are to see you settling in. Please do keep us updated and send us a photo or two of those cute boys at home.
Our hearts are so full....we are praising the Lord for His faithfulness! Love to you all, Sherry

Anonymous said...

Congratulations! It must feel as tho this has taken forever. May you continue to recieve God's blessings and care over the coming months as you all adjust to being home together. You will all do fine, parenting skills will be renewed (handling a newborn, etc.) and you will finally be able to enjoy being home together as a family. YOur other son will probably have the hardest adjustment--be patient with him-ignore anything that won't harm him, re-enforce the positive things he does and let him know he is still loved.
Good Luck and God Bless

JEan, Sabrina Sachs gma (clearlyrandom.com)born with CDH on 10/10/07

Cadenne Hope's Grandma said...

I posted another comment earlier, but somehow it didn't take, so I'll try again! Hope it doesn't show up later and then you'll have TWO messages from me! :)

Praise God! This is the best news ever! Little Ned will have such a story to tell of God's wondrous grace and healing power!

So happy for all of you!

Rusty said...

Congratulations!!! We're so happy for you guys and can't wait to see some pictures of little Ned at home! I know you're all very excited. . . I'll bet Jack can't wait to start showing his little 'bro the ins and outs of life at home!

Rusty, Liz, and Par

heath, belle & kids... said...

Congratulations! You have our blessings and we will continue to pray for your family. Ned is truly a hero. He has touched so many people and families, as mentioned in church this past Sunday. He is a true 'masterpiece' of God's work, as is your family, as you all continued to trust in God's faith during your obstacles with Ned. Our prayers are with you as you continue to make this transition and turn over a new leaf. Love to all...
Heath, Belle, Hunter, Carlton and Carlie Grace Jackson

Tricia said...

WOOOHOOOOOO! Betsy & family.... I'm so excited to read this! I think between me and my mom, we may just start an earthquake in California!! :) Enjoy your babymoon with your little man. I can't wait to read all about his homecoming!!!