Well Folks, He poked his head out free and clear of the vent for about three hours, but it looks like 6 more weeks of winter! Just kidding, it shouldn't be that long? They took Ned completely off the vent this afternoon and he did well for a couple hours, but his breathing just became too labored for him and they had to re-intubate. It was the most wonderful site to see the entirety of his beautiful face!! I thought I had an idea of what he looked like until I finally saw him...then I realized the piecemealed image in my brain was somewhat skewed (and hardly did him justice). They'll give him a couple more days on the vent which is currently working to train and build-up his muscles to teach his body to breath properly. The next time they extubate, I think they're going to try the CPAP before the nasal canula (shown above) which offers a little more pressure support.
More good news:
They finally let me hold my little punkin for the first time today!!! It was a quick visit as they were preparing the medications and equipment to re-intubate him, but after 4-weeks of sitting beside him, wishing I could comfort him, it was that wonderfully familiar kind of feeling like coming home to your own bed after being gone for too long. After I spent Sunday with Jack, I wondered if I would be able to build that same kind of relationship with Ned. (I couldn't ask for better interaction with a 3-year-old than I enjoy with Jack...I genuinely enjoy his company) After I held Ned today and we had a little bonding time, I knew we'd clicked! It was a very surreal yet natural feeling. I don't believe I've ever shared this, but when I was pregnant with Ned, my most frequent dream was that immediately following birth, he and I could have complete sentence, verbal discussions (he wouldn't speak for anyone else- they thought I was crazy). While holding him today, I felt so connected with him, I wouldn't have been completely caught off guard if he had struck up a conversation.
Such blessings we have received! I am learning that this is how God wants us to live....not just how He wants us to survive this trial. Today, Travis received unofficial word that his company is going to be announcing a layoff. Unless there is some exclusion given to his group, he will most defininely be affected. While driving back, I was praying and wondering, "God, when is all this unrest going to end for our family?" He answered, "this is your new lifestyle." I'll have to say, I didn't take to it at first. He reminded me of his life-long relationship with Abraham and how it all began with Abraham leaving out from his comfort zone, with no direction, at the single command of God. It was never God's character to ask someone to follow Him a single time, reward them, and then abandon them. He seeks for His children to walk with him daily (all day, every day). Abraham had many trials and many blessings, but they were over the course of his entire life. Now that I have come to a place where I can trust Him with my children, it was much easier to hand Travis' job over to Him. I said I would ALWAYS trust Him with everything and I can't treat the miracles He has bestowed upon Ned as a one-time gimmic....It's His nature!
I am continuing to pray that Ned's little body will find the strength to maintain on its own and that he won't have to endure much more struggle before reaching a state of autonomy. I pray that he will be able to wean off of the narcotic medications without having to endure withdrawal symptoms. If you will also keep Travis' job situation in mind. I believe that God will show him the direction in which he wants him to go; however, I know he is feeling unrest about the uncertainty of it at the moment. Thank you all for your continued prayers.
Also, for those of you who link to other blogs, a note of praise.....Livvy is now at home!!!! Praise and Thanksgivng to God!
Love you all-
Betsy, Travis, Jack & Ned
6 comments:
Betsy, What a wonderful posting today...Beautiful Ned in Mom's loving arms! So excited about all that God is continuing to do.
I will certainly keep Travis and his job in my prayers. I find that my trials tend to come several in sequence. Why is that? Maybe God is checking to see if I am truly learning what he is teaching me....which is to fully trust Him with everything, as you have said.
Thanks for all the sharing you have done...what an encouragement to all of us! Hey, sounds like home is right around the corner! Can't wait! Love, Sherry
Praise the Lord! He is gorgeous! Thought he was so beautiful gorgeous before. How wonderful to see the pictures of his face without the vent and especially the one of you holding him. Thanks for sharing them with us and letting your picture be taken. Bet you didn't mind that picture at all! Can't wait until sonia gets home from school to show her the picture. We are thrilled to hear of Ned's progress and we will continue to pray for his recovery. We will definitely keep Travis' job a matter of prayer. God has something very special for him. When something like this happens and I also have found that trials do seem to come in clusters, God always has something so much better to take it's place. I just started a Bible study yesterday by Charles Stanley on this very thing. I am anxious to get into the study of the Word to see what God has to teach me. Lots of love, Krista
He really does have the same mouth as Jack!
Seems that from my experience, when things are shaken up a bit or somewhat unusual and out of our comfort zone, it's an opportunity from God to explore unknown territory and is a blessing in disguise.
Keeping you in my prayers,
Jennifer Smith
He is truly a beautiful gift from God. This is all a test of your strength and dedication to the Lord. Follow his guidance and just continue to BELIEVE.
In Christ
Callie C. Billings
Oh, He is so Beautiful, he was beautiful before with the tubes, but now that we can see his little face, he is just gorgeous, just like Jack, I am so glad that you got to hold the little one, finally, you were very patient. Every day we pray that Baby Ned has improvement in every way, and we have truly seen that happen since he has been in this world. We will keep all of you in our daily prayers, and Travis job, there is a reason for everything, and maybe this is God's way of giving Travis sometime at home with you guys, and then a door will open for him. We Love you, "The Alexander's", Kim, Donald, Emily and Brock
Sorry about so many posts...but I'm getting caught up after missing your blog for several days. About the lay off...girl, I completely understand about uncertainty and unrest. I have felt the exact same way. I ask God sometimes...when will we enter into a season of rest? I know that sounds crazy but our lives have been turned upside down on so many fronts over the last 2 years. What he spoke to me was about Hannah and long term suffering. If I can get a hold of your email address, I'll write to you about it. It's def. not the most exciting place to be...BUT...then again, what better and safer place to be than in God's plans and in His care...even if it hurts a little and is uncomfortable for a short or long while.
Julie
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